Resources

Choosing a resource or provider

A directory listing is only a starting point. Verify that a service fits the child's age, location, needs, and safety concerns before sharing medical information or scheduling care.

Identify the service you need

  • Pediatric primary care: first review of growth, hydration, symptoms, development, medication, and referrals.
  • Pediatric dietitian: nutrition and growth-related assessment and individualized nutrition planning.
  • Feeding/swallowing SLP: chewing, oral-motor, swallowing, and feeding-skill concerns.
  • Feeding-trained occupational therapist: sensory, motor, posture, utensils, routines, and participation within the therapist's scope.
  • Psychologist, psychiatrist, or eating-disorder clinician: ARFID-related fear, low interest in eating, anxiety, distress, and mental-health treatment within their training.
  • Pediatric feeding or ARFID program: coordinated care when multiple domains need assessment; Boston Children's Hospital is one example of this model.[2]
  • School team: educational evaluation and daily accommodations; school processes are jurisdiction-specific.

ASHA distinguishes ARFID from pediatric feeding and swallowing disorders and describes interprofessional collaboration as the preferred practice pattern for pediatric feeding and swallowing care.[1] Pediatric clinical guidance also describes multidisciplinary management for ARFID.[3]

Questions to ask before scheduling

  • Do you work with children this age?
  • Do you specifically see restricted eating, ARFID, pediatric feeding disorder, or swallowing concerns?
  • Which parts do you assess, and which concerns require another professional?
  • How do you protect safe foods, hydration, and the child's dignity?
  • Do you use pressure, forced bites, food removal, or a fixed exposure quota? If so, ask for the rationale, risks, alternatives, and stopping rules.
  • How do you coordinate with primary care, nutrition, mental health, the prescriber, and school?
  • Do you need a referral or diagnosis?
  • What are the costs, insurance requirements, waitlist, telehealth options, age range, and location limits?

Signs a resource may not fit

Be cautious if a provider:

  • promises a universal cure or guarantees a number of foods
  • treats all food refusal as defiance
  • dismisses choking, coughing, pain, vomiting, growth, hydration, or medication concerns
  • recommends supplements, elimination diets, or medication changes without individualized assessment
  • cannot explain what they assess, how they protect safety, or when they refer to another professional

Keep directory entries current

For each organization, record:

  • service name and direct link
  • country, state, or region
  • age range and service type
  • informational, directory, clinical, or crisis role
  • date last reviewed
  • what a parent should verify before relying on it

Availability and scope change. A listing is not an endorsement.

Sources

[1] ASHA: Pediatric Feeding and Swallowing — professional guidance on pediatric feeding, swallowing, ARFID distinctions, and interprofessional roles.

[2] Boston Children's Hospital: ARFID Program — example of a multidisciplinary hospital program; local programs differ.

[3] American Academy of Pediatrics: Avoidant/Restrictive Food Intake Disorder — clinical reference describing multidisciplinary management; access may require a subscription.